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SICKLE CELL FOUNDATION OF ARIZONAWWW.360SCDHUB.ORGWelcome & OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Moses AkpanSCFA, President & Project DirectorExperienced & witnessed a lack of education, resources, & support for families Living with SCD Made commitment to change thisPart 1: Welcome & OverviewUnderstanding the VisionBACK IN 2017WWW.360SCDHUB.ORGSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Visit www.scfaz.orgPart 1: Welcome & OverviewSickle Cell Foundation of ArizonaWWW.360SCDHUB.ORGRooting out or Lessening HEALTH DISPARITIES is the Core VISION and GOAL of the Sickle Cell Foundation of Arizona (SCFA).To provide supportive services to those afflicted with SCD, to raise awareness, to remove the stigma about this disease and promote education tothe public, including individuals with SCD and their families, healthcare providers,students in the health care fields, and the Sickle Community about its causes,prevention, treatment, and cure.Establish Key Partnerships -Hospitals/Clinics, Govt Agencies,Private entities Active SCD Communities Support & connect withfamilies/IndividualsEmpower SCD Families/IndividualsHost Events SCD Education - Family & PublicCHW integrated with Care TeamPromote Advocacy & AwarenessTransition – All PhasesOvercome “STIGMA” MissionVisionMain Activities & GoalsSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

The ProblemThe SolutionPart 1: Welcome & OverviewSickle Cell Foundation of ArizonaWWW.360SCDHUB.ORGEducation, share success stories and provideadvocacy and awarenessPromote Communication with Patients (team)Promote Medical Home for Families/individualsEmpowerment - Establish Teams withFamily/Individuals participating and playingleadership roles in planning – Event team,Advisory Group, etc.Orchestrate PSAs and media spots and facilitateindividual and group knowledge and awarenessSCFA - CHW provide support services1. Stigma, Silent patients, Lost to follow-Up, SDOH factors2. Lack of trust in health care system3. Medically underserved population4. Limited accessible to hospitals/clinics/centers5. Little or no public education/information6. Very limited Multidisciplinary ProvidersVisit www.scfaz.orgSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Medical HomePart 1: Welcome & OverviewSickle Cell Foundation of ArizonaWWW.360SCDHUB.ORGTreating SCD today means seeing the wholeperson and considering their lifelong goalsMonitoring for underlying progressivedamages and managing overall health arecrucial for optimal care.Total System ImplicationsTreating sicklecell disease (SCD)is more than justtreating acutecomplications. SICKLE CELL FOUNDATION OF ARIZONAIn Partnership

SICKLE CELL FOUNDATION OF ARIZONAPart 2: 360° SCD Hub Overview1 Year Ago - July 2023Foundational Collaborative OrganizationsThe 360° SCD Hub app is supported by the Health Resources and Services Administration (HRSA) of the U.S.Department of Health and Human Services (HHS) as part of an award financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor anendorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.Collaborative EffortsWWW.360SCDHUB.ORGSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

It’s a movement towards a more informed, supportive and engaged SCD ecosystemWWW.360SCDHUB.ORGMore than just an appSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

TRACK DAILY SYMPTOMSHIPAA Compliant Patient Library Portal MEDICATION DIGITAL DIARYMENTAL HEALTH CRISIS TRACKINGWEATHER TRACKERPAIN CRISISTRACKER with ability to earn points, coins, badges and certificatesWWW.360SCDHUB.ORGPart 2: 360° SCD Hub OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

MonitorTrackIncentivizeCompetitionGOAL - To improve overall user engagmentUSER POINTSGamification with ability to earn points, coins, badges and certificatesGamification FeaturesSICKLESENSE INTERACTIVE REWARDS LEVELSWWW.360SCDHUB.ORGPart 2: 360° SCD Hub OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

PEER GROUPSLIVING WITH SCDEXPERTS NEAR MERESOURCES NEAR MEProfiles, Groups, Communities & ResourcesConnect withpeers/Gain supportamong PeersConnect with Providers(local/state/national) Links to ResourcesLink to Experts NearbyMain FeaturesWWW.360SCDHUB.ORGPart 2: 360° SCD Hub OverviewRESOURCE SITESSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Capture & Track SDOHCapture/Track of SDOHExperienceID where SDOH Can helpFeaturesWWW.360SCDHUB.ORGPart 2: 360° SCD Hub OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

360° Hub Academy & CoursesSteps to Better HealthEducational ServicesPain Management(Immediate/Urgent Care,Intervention)Medication EducationTransition of CareMethodology (4)Empowerment Strategies*Contractual ItemsWWW.360SCDHUB.ORGPart 2: 360° SCD Hub OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

360° HumanExplorer ModelsEarn SickleSenseLearn It! Coins byexploring theseinteractive models forat least 1 minuteWWW.360SCDHUB.ORG360° Hub Academy & CoursesPart 2: 360° SCD Hub OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Trackers, Reports & ProfileWWW.360SCDHUB.ORGPart 2: 360° SCD Hub OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Handbook, Comic Book, LibrariesDRAFTSchool NurseEducation ProgramHandbookEvents PresentationsComic BookDRAFTDRAFTWWW.360SCDHUB.ORGPart 2: 360° SCD Hub OverviewSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

SICKLE CELL FOUNDATION OF ARIZONAPart 3: Development & Launch ActivitiesTimeline ReviewActive Community LaunchJune - July 2024Vendor SelectionPlanning &DevelopmentExpertReview Modifications& Soft LaunchJune - July 2023August - December 2023January - March 2024April - May 2024Power PartnersWWW.360SCDHUB.ORGSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Part 3: Development & Launch ActivitiesActive Launch - June & July 2024Community Outreach Events360SCDHUB.ORGGeneral CommunityLiving with SCD Medical CommunitySICKLE CELL FOUNDATION OF ARIZONAIn Partnership

WWW.360SCDHUB.ORGPart 3: Development & Launch ActivitiesMedicaid Innovations Leadership Conference, July 22, 2024 SCFA Board Member Presentation360SCDHUB.ORGSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

WWW.360SCDHUB.ORGPart 3: Development & Launch ActivitiesLessons Learned 12 months OutBuilt In SustainabilityBe separate, but complementary,to the HRSA grant funded app thatcan not be soldSupport the 360° SCD App beyond the grant periodBe easy, healthy, virtual &recurring new revenue streamCan help support the entire familybeyond SCD Reality Health Games Fundraiser designed to:We used some of our Community Reinvestment Funds to position as a supporting corporate and community partner WWW.360SCDHUB.ORGSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

TheSweet SpotWWW.360SCDHUB.ORGFoundationalCommunityRelationshipsInnovativeTechnologyPartnersCommunityActivation & SupportPart 3: Development & Launch Activities: Lessons Learned 12 months OutRelationships,Tech & Support MatterBuilt-In Sustainability to Extend Beyond Grant PeriodSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

Part 3: Development & Launch ActivitiesCommunity Outreach Events360SCDHUB.ORGSICKLE CELL FOUNDATION OF ARIZONAIn Partnership

SICKLE CELL FOUNDATION OF ARIZONASeptember EventsSickle Cell Awareness MonthWWW.360SCDHUB.ORGSept 1 - Proclamation AnnouncementsSept 7 - Health Fair & Blood Drive at DunbarSept 21 - Movie Night for SCD FamiliesSept 26 - Quarterly Community Round TableSept 28 - Movie Night for SCD Families*Statewide Refugee Task Force Launch*AZ School Nurse Organization Training*Dates to be announced soon

Meet the Leadership TeamSICKLE CELL FOUNDATION OF ARIZONAKevin JohnstonSCFA, Board MemberDefense IndustryDr. Robert GillioChief Medical Officer The Force for Health Networkdrrobgillio@theforceforhealth.comLucy HowellChief Executive Officer The Force for Health Networklucy@theforceforhealth.comMoses AkpanSCFA, President & Project DirectorSarah SpiekermeierSCFA, Board MemberBanner Health Plan & Network360° SCD Hub CommiteeSICKLE CELL FOUNDATION OF ARIZONAWWW.360SCDHUB.ORG